CHIARI SUPPORT TEAM

Amanda Johnson – Outreach Coordinator

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In this role with The Chiari Project, Amanda helps the Chiari community through social media as she manages Chiari groups on Facebook and Instagram. By increasing her social media following throughout the years, she is now able to educate and inspire with informative posts as well as entertaining memes. Amanda is excited to be serving in this capacity to help mobilize the community in a global effort to create awareness and raise funds for more pain management research.

Amanda has a background in marketing, talent, and customer service which she secured during her time at WWE (World Wrestling Entertainment). She also has a background in education as she worked as an early childhood teacher and consulted with families about their young children ages 0-5. Amanda was diagnosed with Chiari Malformation when she was 30. Although she has been dealing with the symptoms all of her life, she finally had a name for the condition.

Amanda enjoys watching her sports teams; Patriots, Lakers, Yankees, and Avalanche. She also creates awareness for pitbulls and ADEM, another rare neurological condition. Amanda currently lives in Northern California with her pitbull, Dallas. Arf! Arf!

 

Ashley Lengel – Director of BrainSpire

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Ashley is a recent graduate of University of Cincinnati, but has struggled with chronic migraine her entire life, but felt the full effects of Chiari Malformation starting in her sophomore year of college. Since her decompression surgery, Ashley has been an active participant in the Bearcat Bands, in several student honorary organizations, and as a College of Engineering and Applied Science ambassador. She was selected to speak at UC’s freshmen convocation in 2016 to speak about her Chiari journey. Ashley still suffers but plans to pursue a career as a Physician Assistant in Child Neurology to help others struggling with neurological illness. She is currently in graduate school in Houston.

She is proud to volunteer and spread awareness for The Chiari Project where she will lead BRAINSPIRE, a motivational speaking initiative for those who overcome the challenges of CM and associated neurological conditions. 

Kenny McBride – Director of Art

Kenny McBride is a pop surrealist who specializes in fine art, murals, live painting, and art workshop instruction. Kenny’s passion has grown into starting a family business called McBride Arts, where he teamed up with his wife & fellow artist, Anna. Together they offer murals, fine art commissions, and painting workshops for public and private parties. With over 30 completed murals, his work sites range from public bridges, businesses, restaurants, churches, schools and residences.

Kenny’s motivation to do art began in childhood with the pursuit to illustrate his imagination and evolved to inspire the viewer to get lost in their own imagination, heal, transform space, engage critical thought and most often, to just smile. Kenny continues to dedicate his time in creating such beautiful art for The Chiari Project’s Limited Edition Friends Initiative.

Maria McCutchen – Content Editor

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Maria McCutchen currently lives in Tennessee. She is a freelance writer and author of two books; including her memoir, “It’s all in Your Head.” She has been writing for many years; and for the past ten years she has been freelancing, writing articles for web content. She is an activist for those with brain cysts and Chiari Malformation. She continues to help those who live with these rare medical disorders by educating them through her articles and her book. Maria is focused to give her time and energy to The Chiari Project.